June 2013
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Balancing Cancer Excitement with Cancer Reality

Photo courtesy of Jennifer Glass

This time of year we hear the word “exciting” used a lot when it comes to cancer. Specialists and clinical investigators in many cancer conditions are upbeat as study results come out at the American Society of Clinical Oncology Meeting (ASCO) in Chicago and the European Hematology Association meeting [...]

Why You Must Demand Precision Medicine for Cancer

The Human Genome Project was a really big deal, identifying the genes that make up our body. And quantum leaps in computing power, added to scientific discoveries, have been helping cancer specialists identify subtypes of disease, enabling drug developers to come up with ever more targeted therapies. More and more of these medicines for ever [...]

Diagnosed with Leukemia? Are You Sure?

The headlines each day bring more good news about progress in treating blood cancers. We now know more than ever before about leukemia, lymphoma, myeloma and other disorders. There used to be a fairly standard approach to treatment, but that’s changed too. There are many subtypes and new therapies, new drug combinations, various clinical trial [...]

The Sudden Death of Randy Shirley, a Leukemia Loss

The news around leukemia has been so positive. The recent American Society of Hematology (ASH) meeting in Atlanta was buzzing about it. New powerful, promising medicines for CLL and CML and better approaches for acute leukemias too. Just before ASH I conducted a lengthy interview with Randy Shirley, 55, from Marysville, Washington, north of Seattle. [...]

A Personal Perspective on CLL and Myelofibrosis Progress

Andrew Schorr shares his optimism for patients with leukemia, lymphoma, myeloma and other blood cancers, while attending the 2012 American Society of Hematology meeting in Atlanta, Georgia.

New Oral Blood Cancer Treatments Bring True Excitement in CLL and CML

Is chemo dead? Maybe not yet, but in some diseases it is fading fast. In 2000 I was one of the early patients to receive FCR for chronic lymphocytic leukemia (CLL) in a phase II trial, and thousands have followed. The F and the C are chemotherapies and they are not kind to your body. [...]

Planeloads of Doctors Determined to Cure Blood-Related Cancers

I had a weird experience yesterday. I flew from my home in Barcelona, Spain, changed to a bigger plane in Paris, and flew to Atlanta where the American Society of Hematology (ASH) annual meeting is taking place this weekend and into next week. On the Paris to Atlanta flight the 300 or so seats were [...]

Just-in-Time Health Information

Most of us at Patient Power have been devoted to patient education for many years. My wife Esther and I produced our first patient video in 1984; one of the first to acknowledge a patient’s fears and discuss the emotional side of illness rather than just being a dispassionate discussion of a medical procedure. We [...]

Blood Cancer Awareness Month: Awareness Alone Is Not Enough

This month (September) is Blood Cancer Awareness Month. It’s pretty personal for me since I have lived with chronic lymphocytic leukemia (CLL) since 1996. When I was diagnosed it was difficult to find the information I needed, and that was one of the key reasons I founded Patient Power. Along the way I have met [...]

Why Subtle Test Results Matter to Patients

It wasn’t so long ago for you and me – and still is for millions of others – that whatever the doctor said was all that mattered. And usually the doctor didn’t say all that much. He or she would tell you what they thought was wrong with you and what they were going to [...]