Are Some Patient Advocacy Groups Going “Corporate?”

Ok. I am sounding off again.

I am an entrepreneurial kind of guy. I spent some time in “Hollywood” and thought it was cool that some big movie deals were actually worked out by producers and studios over lunch at a deli (I love corned beef!) and with the terms [...]

Frank Burroughs is a man on a mission. His daughter, Abigail, died of a serious illness when a new medicine, in the late stages of approval might have helped. She was out of options and did not qualify for a clinical trial. Would the FDA give her access to the promising drug? No. Abigail died [...]

As you may know, I host a live radio show most days called Patient Power. I am often bowled over by the people who my producers line up to be on the show. Many are truly among the most “powerful patients” you will ever meet.

A great example was just the other day (link to replay) [...]

It’s not yet Breast Cancer Awareness Month, but I am not one to believe we need to wait for a given “month” to put emphasis on a health concern and write about it. So here’s an unusual breast cancer story that’s also a story of family love and sacrifice.

It started with me doing what you [...]

The other day I met Roger Gruss from near Seattle. He’s 54 and has been fighting a subtype of Sarcoma, a rare cancer to begin with. There are only 150 in the U.S. diagnosed with this cancer type each year. So, not surprisingly, his cancer was first misdiagnosed and then later became quite interesting to [...]

I was on a weekend visit to California to see friends and relatives. The man, in his 70’s, was waiting for me as I took my 10-year-old son for a swim at the pool at grandma’s condo in Los Angeles. “Hi Andrew,” he said as he pulled up a chair alongside me at poolside. “I’m [...]