In the meantime, Ruth missed a lot of school (70 days in one year). Last year at this time, she was mostly staying home and feeling in pain and tired.
I don’t want to jinx it, but now she is on an experimental approach using the cancer and Crohn’s drug methotrexate as a weekly shot, and it seems to be working! Ruth almost always goes to school, is riding her bike, and going to dance class and playing with friends. Our only problem is she’s is very ornery — like most pre-teen girls, I am told. Maybe that’s a healthy sign??
Anyway, I wanted to point out the experience of the fog lifting, as suddenly the worried parent or spouse or friend can see that the heavy weight of daily health tribulations is abating. You look around, and there has been measurable improvement. It doesn’t mean your loved one is all better, but you can see that things are much better.
With chronic conditions, it isn’t like turning off a switch but shows up more as incremental, positive change over time. That’s good for me, and I know it has been for Ruth.
How about other parents and caregivers? I hope you’ve seen positive change like that too and been able to breathe a bit of a sigh of relief. We may not be out of the woods, but the woods are less dense for sure!